Ehlers-Danlos Syndrome (EDS) and Aging

Common Changes and Expectations

As individuals with Ehlers-Danlos Syndrome age, they may experience several changes that can affect their quality of life. Joint stability often decreases, and there is an increased risk of developing osteoarthritis, particularly in the knees, hips, and hands. Skin elasticity and healing capacity may diminish, leading to more pronounced scarring and bruising. Cardiovascular issues, such as varicose veins and an increased risk of heart valve problems, may also become more apparent.

Strategies for Managing Aging with EDS

1. Physical Therapy: Engaging in regular, gentle exercises as recommended by a physical therapist can help maintain joint stability and mobility. Water aerobics, pilates, and light resistance training are beneficial.
2. Regular Monitoring: Frequent check-ups with healthcare providers, including cardiologists and rheumatologists, are crucial. These professionals can monitor the progression of symptoms and adjust treatment plans accordingly.
3. Nutritional Support: A balanced diet rich in vitamins C and D, calcium, and omega-3 fatty acids supports skin, bone, and cardiovascular health. Consultation with a nutritionist can help tailor dietary needs to individual health profiles.
4. Skin Care: Using sunscreen and protective clothing can help manage skin sensitivity and reduce injury. Emollients and proper wound care can also mitigate skin damage.
5. Community Support: Joining support groups, either online or in person, can provide emotional and practical support. Resources like The Ehlers-Danlos Society offer valuable information and community connections.

EDS and Life Expectancy

Life expectancy in individuals with EDS varies depending on the type and severity of the disorder. Most types of EDS do not significantly affect life expectancy, but some complications associated with vascular EDS, such as organ and vessel rupture, can be life-threatening. Regular medical reviews and proactive management of symptoms are essential. For more detailed information on the impact of EDS on life expectancy, refer to the comprehensive studies and guidelines available at NIH’s Genetics Home Reference.