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EDS in Video

Welcome to EDS Joint Effort, your comprehensive resource for education and advocacy on Ehlers-Danlos Syndromes (EDS) and related conditions. Our video library is curated to empower patients, caregivers, and healthcare professionals with the most relevant and insightful information available.

  1. YouTube compilation: Explore our dynamic collection of recent YouTube videos featuring contributions from major EDS nonprofits and influential voices in the community. These videos provide a broad spectrum of perspectives and updates, from personal stories and coping strategies to advances in medical research and advocacy efforts.
  2. DocToks: Dive into our ‘DocToks’ series for concise, powerful snippets extracted from extensive expert webinars. These short videos distill critical information into digestible bits, allowing for quick learning and easy sharing of essential insights and medical advice related to EDS management and treatment.

Browse our diverse video offerings to enhance your understanding of EDS and connect with the wider community through shared knowledge and experiences.

Interactive Session: Improving POTS Clinical Care

Interactive Session: Improving POTS Clinical Care

Mar 5, 2026 Channel Video

What to Treat First When Everything Is Flaring with Dr. Dacre Knight (Ep 186)

What to Treat First When Everything Is Flaring with Dr. Dacre Knight (Ep 186)

Mar 5, 2026 Channel Video

POTS is more than “getting dizzy when you stand up.”

POTS is more than “getting dizzy when you stand up.”

Feb 26, 2026 Channel Video

Too many patients with EDS, POTS, and mast cell symptoms aren’t under-diagnosed — they’re gaslit.

Too many patients with EDS, POTS, and mast cell symptoms aren’t under-diagnosed — they’re gaslit.

Feb 19, 2026 Channel Video

Why Doctors Miss EDS, POTS, and MCAS with Dr. Dacre Knight (Ep 184)

Why Doctors Miss EDS, POTS, and MCAS with Dr. Dacre Knight (Ep 184)

Feb 19, 2026 Channel Video

Too many patients with EDS, POTS, and mast cell symptoms aren’t under-diagnosed — they’re gaslit.

Too many patients with EDS, POTS, and mast cell symptoms aren’t under-diagnosed — they’re gaslit.

Feb 12, 2026 Channel Video

2025 - Music as Healing - Ann-Britt Schlein

2025 - Music as Healing - Ann-Britt Schlein

Feb 4, 2026 Channel Video

Webinar: How to Get Involved with Dysautonomia Advocacy

Webinar: How to Get Involved with Dysautonomia Advocacy

Feb 3, 2026 Channel Video

2025 - It's Never Too Late: Bodies, Brains & Burnout - A Personal Story - Jane Green

2025 - It's Never Too Late: Bodies, Brains & Burnout - A Personal Story - Jane Green

Feb 2, 2026 Channel Video

2025 - Living with Autism and EDS - Sarah Clark

2025 - Living with Autism and EDS - Sarah Clark

Feb 2, 2026 Channel Video

2025 International Scientific Symposium - Discovering My Voice - Cristie Vito

2025 International Scientific Symposium - Discovering My Voice - Cristie Vito

Jan 23, 2026 Channel Video

Dysautonomia in Mast Cell Activation Disorders

Dysautonomia in Mast Cell Activation Disorders

Jan 21, 2026 Channel Video

2025 Symposium - How do I Keep Going When Everything Hurts? - Dr. Sarah Cohen-Solomon

2025 Symposium - How do I Keep Going When Everything Hurts? - Dr. Sarah Cohen-Solomon

Jan 21, 2026 Channel Video

Research Update: Platlet Storage Pool Deficiency in POTS and Long COVID

Research Update: Platlet Storage Pool Deficiency in POTS and Long COVID

Dec 26, 2025 Channel Video

Webinar: Research Update- Transcutaneous Vagus Nerve Stimulation

Webinar: Research Update- Transcutaneous Vagus Nerve Stimulation

Dec 9, 2025 Channel Video

EDS Empower Hour: Dr. Golder wilson on EDS Genetics & Testing

EDS Empower Hour: Dr. Golder wilson on EDS Genetics & Testing

May 29, 2025 Individual Video

EDS Empower Hour: Guest Dr. Tania Dempsey

EDS Empower Hour: Guest Dr. Tania Dempsey

May 29, 2025 Individual Video

EDS Empower Hour: Guest Dr. Akilah Cadet

EDS Empower Hour: Guest Dr. Akilah Cadet

May 29, 2025 Individual Video

Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137)

Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137)

Mar 20, 2025 Individual Video

Hormonal Therapies, Testosterone, and Regaining Libido - from the Bendy Bodies Podcast Ep.130

Hormonal Therapies, Testosterone, and Regaining Libido - from the Bendy Bodies Podcast Ep.130

Mar 16, 2025 Individual Video

CCI: clinical diagnosis, radiological metrics, treatment and outcomes - Dr. Fraser C. Henderson, Sr.

CCI: clinical diagnosis, radiological metrics, treatment and outcomes - Dr. Fraser C. Henderson, Sr.

Mar 12, 2025 Individual Video

EDS Empower Hour - Jonathan Parr, Parr PT

EDS Empower Hour - Jonathan Parr, Parr PT

Nov 18, 2024 Individual Video

EDS Empower Hour: Guest EDS Advocate Maggie Buckley

EDS Empower Hour: Guest EDS Advocate Maggie Buckley

Jan 16, 2024 Individual Video

EDS Empower Hour: Q&A with PTs on UCI & Craniocervical Instability Guide for Patients

EDS Empower Hour: Q&A with PTs on UCI & Craniocervical Instability Guide for Patients

Mar 30, 2023 Individual Video

Top Ways to Activate Your Vagus Nerve Top 10 List

Top Ways to Activate Your Vagus Nerve Top 10 List

Mar 22, 2023 Individual Video

EDS Empower Hour: Special Disability Discussion with Doctors & Lawyers

EDS Empower Hour: Special Disability Discussion with Doctors & Lawyers

Oct 24, 2022 Individual Video

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The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

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    The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.

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