Genetic Counseling for EDS

Partnering with Dr. Golder Wilson to Bring You Clarity and Credibility

If you or your loved one is struggling to get clear answers about a suspected connective tissue disorder like Ehlers-Danlos Syndrome (EDS), you’re not alone—and you’re not without options.

At EDS Joint Effort, we believe that every patient deserves access to accurate, science-based answers and compassionate interpretation of their health concerns. That’s why we’ve partnered with Dr. Golder Wilson, a leading clinical geneticist and expert in connective tissue disorders, through his private practice at KinderGenomeEDS.com.

Why Genetic Counseling Matters for EDS

Most forms of EDS—especially the rarer types—can be confirmed with genetic testing. Even for hypermobile EDS (hEDS), which currently lacks a single known gene marker, a skilled geneticist can help rule out other types, interpret results from comprehensive panels, and document a likely clinical diagnosis based on your personal and family history.

But many patients never get access to this level of care. That’s where we step in.

What We Offer: A Direct Path to Genetic Clarity

Thanks to our partnership, Dr. Wilson offers a low-cost consultation option of $100 exclusively for our EDS Joint Effort community. This includes:

• A review of symptoms, history, and any previous test results

• Guidance on ordering the correct Connective Tissue Disorder genetic panel

• Interpretation of results using up-to-date diagnostic standards

• A personalized summary letter or diagnostic statement to support medical records, disability claims, school accommodations, or other needs

This isn’t just about testing—it’s about understanding, validation and answers.

Who Should Consider Genetic Counseling?

• Patients struggling to get a confirmed diagnosis

• Those with complex symptoms suggesting a rarer EDS subtype

• Families with more than one affected member

• Anyone considering surgery, disability, or long-term care planning

• Patients who’ve had previous testing but never received a clear explanation of results

How It Works

You’ll be guided step-by-step in working with Dr. Wilson and can access his affordable services regardless of location, as his consults are offered via telehealth.

To learn more or book a session directly, visit:
👉 www.KindergenomeEDS.com

Or reach out to us at EDS Joint Effort for help initiating the process.