Tools

Navigating the World of Tech and Tools for EDS and Chronic Illness Management

In today’s digital age, a myriad of technological tools and applications are available to support individuals living with Ehlers-Danlos Syndrome (EDS) and other chronic illnesses. These tools encompass a broad range of functionalities—from symptom tracking and management to virtual healthcare consultations and personalized medical advice. While the sheer volume of options can seem overwhelming, our focus is on bringing you curated recommendations that have been tried, tested, and endorsed by our collaborative community.

We understand that each patient’s needs are unique, and what works for one might not work for another. That’s why the forthcoming subsections of our website are dedicated to outlining the best tech tools we know of, contributed by those who understand these challenges firsthand: the patients and caregivers within our community. From mobile apps that help manage daily medication schedules to sophisticated wearable devices that monitor vital signs and predict potential complications, we aim to provide you with up-to-date, practical, and relevant resources. We’ve got lists of books, podcasts and more. See the links below.

Stay tuned as we explore these technological advancements that not only promise to ease the management of EDS but also empower patients to lead more controlled and fulfilling lives. And stay tuned because the tech landscape is always changing!

Apps

Books

Podcasts

Stop searching!

Get information sent directly to your inbox!

Get involved in the movement to help find answers faster through community sharing. #Sharingiscaring

The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.